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Emergency Care

Learn how to identify, manage and seek help for acute FPIES reactions

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Your one-stop-shop for getting started with your family's FPIES journey

Learning Library

Expand your knowledge of FPIES with FREE online and printable resources

FPIES Registry

Join the Global FPIES Patient Insights Network, adding your voice to FPIES research

Providers

Resources and support for providers caring for patients affected by FPIES

Connect

Read about how others are navigating FPIES and share your story!

For Kids

Kid-specific FPIES resources for affected kids, as well as their siblings and friends

School Smart

Tools to navigate school for kids, parents, and the teachers who support them

Educational Opportunities for
Global FPIES Day ~ October 14th

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Online Learning Library
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Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods, or after drinking formula?

Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive?

These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.

What is FPIES?

Looking for unique ways to support the FPIES Foundation?

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Meet our Team

Powered by parents and volunteers, The FPIES Foundation is an all volunteer organization born from the vision of eight families all affected by FPIES, dedicated to changing the lives of future families and the children they support.

Amanda LeFew

Executive Director, Medical Liaison

Amanda lives with her husband and two daughters in Massachusetts, both girls have FPIES. As an MT-BC, she has a passion for outreach and patient education. Amanda is a Foundation Founding Member.

Joy Meyer

Executive Director

Joy lives in Minnesota with her husband and their four boys; their youngest has FPIES. As a DTR, she has a love for Nutrition and a passion for helping others. Joy is a Foundation Founding Member.

Medical Support

Medical Advisory Board

The FPIES Foundation is proud to be supported by our Medical Advisory Board, a team of multidisciplinary leaders in FPIES research, treatment, and support.

Questions about FPIES, Answers from our MAB

FPIES Q&A

From Our Blog

Providing a network of caring -- the support you need to support those living with FPIES.

Researching FPIES: The Best Ebook Titles to Consider

Navigating your child’s Food Protein-Induced Enterocolitis Syndrome (FPIES) can be tricky, but know that many parents face this challenge, so you're not alone. A 2021 review shows that FPIES may not be as rare as it once was. This diagnosis may feel limiting for parents who want their children to explore new foods. However, proper research will help you make informed decisions, so your child still enjoys a tasty and balanced diet.

Challenges and Unmet Needs in FPIES from the Parents and Adult Patients’ Perspective – an International Survey

Researchers were very interested in learning more and have published a paper on what they have learned, from YOU! The results of the survey show researchers that the key priorities for the community are: better awareness among health professionals, having diagnostic tests to avoid misdiagnosis, as well as predictive tests to guide safer food trials. Future research and initiatives will be guided by these priorities!  

Connect With Us!

Are you in need of resources for your child's school or daycare? Would you like to volunteer with the Foundation? Do you need help finding an FPIES-familiar specialist to help support your child? Reach out for resources and support-- we are happy to help you find the tools you need to support those living with FPIES.
Fill out our form or contact us directly at: contact@thefpiesfoundation.org 
Connect via Postal Mail

P.O. Box 304

Stewartville MN 55976

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